The Months That Followed

Following news of my diagnosis, and after my first visit with a heart failure specialist, our next stop was back at the hospital to have an implantable cardioverter-defibrillator (ICD) placed. We returned to the same same-day surgery unit where I had undergone my ablation and, to our delight, were assigned the same nurse. Clo was absolutely wonderful, making sure we were comfortable and genuinely cared for.

That day, I received a single-lead ICD pacemaker and was sent home within hours, hoping and praying I would never need the device.

Two weeks later, I found myself back in the hospital with chest pain. I assumed it was my gallbladder, but testing revealed nothing. The pain was then presumed to be cardiac in nature, so I was admitted overnight for observation. A good dose of Toradol finally eased the pain, and I was discharged the next day without answers.

The only thing that incident clarified was that we needed new doctors. During my entire 24-hour hospital stay, neither of my cardiologists could be reached. A follow-up visit with my heart failure specialist confirmed that he hadn’t even been informed of my admission—despite Aaron having called his nurse to notify them. Shortly after, we received a referral to Dr. Bunch at the University of Utah.

Our first consultation with him took place over the phone. He had already reviewed my chart and immediately prescribed several medications—something my previous doctors had not done. From the start, we felt reassured that we were finally in capable hands.

Things went smoothly for a few months, until March 16. I was sitting at Keelie’s basketball game when I experienced a sudden wake-up call. I glanced at my watch and saw my heart rate was 152.

152?

I was just sitting on a bench watching the game. I wasn’t emotional or excited—and I didn’t feel anything unusual at all. Discreetly, I got up and went to the restroom to run an ECG on my watch. I recognized the tracing immediately: ventricular tachycardia.

I was shaken, scared, and confused. How was this happening? And why?

Once I got home, I sent a PDF of the tracing to Dr. Bunch’s office. A physician assistant called me back, advised me to increase my anti-arrhythmic medication (flecainide), and asked me to send a transmission from my ICD.

Normally, the ICD records VT episodes and automatically sends that data to the doctor’s office. I sent the transmission, but the PA told me she didn’t see any recorded events. While I was relieved I hadn’t received a shock that day, I was deeply confused. I knew I’d had several minutes of VT—and that is not insignificant.

They decided I should wear a heart monitor for 30 days.

I wore the monitor until mid-April, anxiously awaiting the results. But before my doctor could review the findings with me, my heart decided to escalate matters.

On April 29, after seven days of intermittent VT—culminating in an episode lasting several hours at a rate of 140–160 beats per minute—Aaron took me to the emergency room for cardioversion. What we thought would be a quick ER visit turned into a 12-day hospital stay, most of it spent in the ICU.


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Author: Fiauna

Navigating life with a borrowed rhythm. Sharing my heart transplant journey one story at a time.

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