family – Witness Marks

The Beautiful Weight of a Shorter Life

A few summers ago, while travel was on hold as I waited for a heart transplant, my family had to get creative about how we spent our time. With nowhere to go and plenty of hours to fill, we found ourselves wandering through the city cemetery.

Morbid? Maybe.

But for us, it felt more like a small, unintentional anthropology project.

We began noticing patterns in the dates carved into the headstones. Our completely unscientific research revealed something interesting: if a person managed to survive childhood, the next major hurdle seemed to be middle age.

There were a surprising number of headstones marking lives that ended around fifty.

And by anyone’s standards, fifty is not old.

That observation has stayed with me.

Recently, my autistic daughter Keelie learned that her dear friend Annie is facing a health challenge. In a moment of anxious honesty she said, “I’m afraid Annie won’t live to be eighty years old.”

Annie is twenty-five.

And the truth is, reaching twenty-five is something Annie’s family already considers a miracle, given the circumstances of her extremely premature birth.

She isn’t the only young person I know living with what might be called a “limited-time offer” here on earth. Sadly, there are a few others whose lives carry that same uncertainty.

And yet, if you know them, you know something remarkable.

Their lives are beautiful. Meaningful. Inspiring.

Each one seems to have been gifted with talents, interests, and joys that exist for no other obvious reason than to bring them happiness—or perhaps to quietly teach the rest of us something about how life is meant to be lived.

If you know, you know.

No one who knows these young people would ever say their lives lack purpose. If anything, their lives shine with it.

And because of that, we celebrate differently. Each year matters more. Each month. Each ordinary day.

So what would you do if you knew your life might be shorter than expected?

I’ll tell you one thing—it has a funny way of making sixty-year-olds look awfully young.

The other night Aaron and I found ourselves talking about death and dying. I’ll admit, it’s not exactly the most romantic bedtime conversation. But the question came up: why are people so afraid of death?

Aging, at least from what we can observe, doesn’t always look particularly appealing. If we’re honest, the process leaves quite a bit to be desired. So if aging isn’t exactly the dream scenario, why does the thought of death frighten us so much?

And suddenly something occurred to me—something I had realized before but never quite put into words.

I had faced death once already.

I had looked it straight in the eye.

And what I felt wasn’t fear.

It was sorrow.

In the months leading up to my transplant, there were moments when the reality of my situation would surface with startling clarity. The heart condition that made my transplant necessary—ARVC, also known as ACM—could have caused sudden cardiac arrest at any time. And of course, the transplant surgery itself carried its own risks.

I didn’t know when the call would come telling me a heart was available. But in the weeks before it finally did, I had a strange sense that something was approaching.

The only way I can describe that time is that it felt a little like Katniss Everdeen before she entered the arena in The Hunger Games—a quiet moment standing at the edge of something enormous and uncertain.

But the truth is, I wasn’t afraid to die.

What I feared was leaving.

Leaving my husband.
Leaving my children.
Leaving the people I love to carry the weight of that loss.

Because I know what that kind of loss feels like.

I have already grieved the deaths of too many people I love—a dear brother, a beloved sister-in-law and friend, my daddy, and grandparents who meant the world to me. I know the hollow ache grief leaves behind.

And if there is anything I would wish to spare someone, it would be that kind of pain.

But grief tells a story of its own.

It tells us that a life mattered.

It tells us that love was real.

And in that sense, a life that is deeply loved—no matter how long it lasts—is not a tragedy.

It is something to celebrate.

A life isn’t measured only in its length, but in the love it gathers and the meaning it leaves behind. Some people are given many decades to discover that truth. Others seem to understand it much earlier. And the rest of us, if we’re paying attention, are lucky enough to learn from them—to celebrate the ordinary days, to hold our people a little closer, and to remember that even a shorter story can still be a meaningful one.

The Gym is not Your Village

To be honest, not much running has been happening this week. I haven’t been feeling great. And around here, when mama doesn’t feel great, nobody feels great—meaning my not feeling great tends to ripple outward, creating a low hum of anxiety for everyone else. Still, I push on with my morning walks with friends. We’re experiencing an unusually mild winter, one that has gifted us many pleasant morning miles. I’m not complaining.

The other morning, our conversation turned to a big change coming to our neighborhood—one that has left most of us feeling disappointed. Maybe worried. At the very least, unsettled. It’s something some of us anticipated, yet still something we’re not happy about: a new development that will inevitably impact our community in ways that make us feel a loss of control.

When we built our home here twenty years ago, community was one of the most important factors in our decision. We were a young, growing family, searching for a safe, family-friendly place where our children could grow up feeling connected. We wanted a village. And a village is exactly what we found.

Over the years, our neighbors have walked alongside us through our daughter’s autism diagnosis, my brother’s sudden and tragic death, my sister’s stroke at thirty-four, my ARVC diagnosis and eventual heart transplant, thyroid cancer, and the loss of our parents—along with the countless mishaps and quiet struggles of everyday life. And we’ve done the same for them. We’ve cried together in seasons of grief. We’ve shown care through meals delivered during sickness, tragedy, or the arrival of a new baby. We’ve celebrated joy-filled milestones side by side. When I need a cup of sugar, a splash of milk, or a teaspoon of baking soda, I know exactly who to text.

That is community.
That is a village.

I don’t know who needs to hear this—though I suspect quite a few people do this time of year—but the gym is not your village. Yes, you read that right: the gym is not your village. I say this as someone who is very much pro-gym. I once had a Pilates studio in my basement where I taught group fitness classes. I speak—er, write—as someone who knows.

Years ago, after a devastating miscarriage, my husband gently suggested I find a new hobby—something to distract me, something that might help me move forward. I certified in Pilates and yoga and began teaching classes in my basement to women in my community. The classes grew. I added High Fitness. Eventually, I was teaching every day of the week. I was incredibly proud of what I’d built. Proud of my participants. Proud of what I believed was a community.

But when the proverbial crap hit the fan and my health forced me to shut down the studio, I found myself unexpectedly alone. It wasn’t the studio participants who showed up with meals, took me out to lunch when I needed encouragement, or sat quietly with me as I gave voice to my grief and fear. It was my neighbors, my family, and my long-rooted friends who did that.

The gym is wonderful for building strength, lifting mood, and connecting with like-minded people. It serves an important purpose. But true community is built through service. A village grows from the steady rhythm of giving and receiving—of showing up and being seen. If you want a village, you must be willing to be a villager: doing the work, offering effort, and investing in others. By and large, people at a gym are there for their own progress, focused on personal goals. They aren’t there for you—and that distinction matters.

When I walk with my friends and neighbors in the morning, I’m stepping into a different kind of rhythm—one shaped by presence rather than progress. The sidewalks and trails bear witness to our grievances, our long-winded pondering, and our unrestrained laughter. Those miles hold our stories. They hold us.

And even as our town changes—even as new developments threaten to reshape the place we love—I’m reminded that a village isn’t made of houses or roads or plans drawn on paper. It’s made of people who stay. People who show up. People who know your garage door code and which soda you like from the gas station.

No matter how the landscape shifts around us, in sickness and in health, this sisterhood, this village, is something I will always carry with me.

Permission to be Human

The holiday season arrives each year dressed in bright lights and confident cheer, announcing itself as a time when everyone is supposed to feel warm, grateful, and whole. Songs insist on joy. Social media posts glow with parties and matching sweaters. Calendars fill with gatherings and traditions. But sometimes this season quietly overlaps with something much heavier: reality—illness, exhaustion, and a sadness that feels out of place among all the celebration.

Being sick during the holidays carries a particular loneliness. Sickness already narrows the world—your body asks you to slow down, to cancel plans, to listen closely to discomfort. When it coincides with a season that emphasizes togetherness and energy, that narrowing can feel like exclusion and loneliness. You may watch celebrations from a distance, physically or emotionally unable to participate. Even minor illnesses can feel larger in December, as if they are stealing something precious and irreplaceable.

There is also the emotional weight of feeling “down” when happiness seems mandatory. Feeling anything less than cheerful during the holidays often brings guilt along with it—the sense that you are wasting something special, that you should be more thankful, more cheerful, more present. This pressure can make sadness feel like a personal failure rather than a human response. It can be difficult to admit you are struggling when everything around you insists this is the season of joy.

And so a cycle forms. When the body is weak or in pain, the mind grows heavy. When the mind is heavy, the body feels even more tired. Days blur together. Things that once brought comfort and excitement—decorating, cooking, visiting—may feel like an extra chore. Instead of anticipation, there is endurance. Instead of celebration, there’s perseverance.

A few nights ago, I woke in the darkness with intense back pain. I rolled carefully in bed, trying not to wake Aaron. He has been especially busy at work with end-of-year planning, and I didn’t want to disturb his sleep. As the night went on, I found myself in pain and needing the restroom every thirty minutes. I had no choice in the matter—despite all my effort, my restlessness woke Aaron. Though I knew what was happening, I didn’t want to admit I needed help. If I was sick and went to the hospital, there was a real chance I could end up admitted. And that would ruin Christmas for the whole family. So, I convinced him I could wait it out.

By morning, I felt better and proudly announced to my family, “I passed a kidney stone last night.” I assumed the worst was behind me. The next day we went holiday shopping, watched a movie, and I cuddled my granddaughter—quietly congratulating myself for getting through that awful night without intervention.

The following evening, after a beautiful Christmas Sunday at church, the pain returned. Slowly at first, then steadily worsening. As it intensified, so too did the realization that I needed help. A fever followed, and the night became a long stretch of pain and discomfort. Again, I tried not to wake Aaron. He had client appointments the next day, along with a Christmas lunch for his employees. How could I interrupt that?

By morning, he insisted on driving me to the emergency room. I urged Aaron to leave and attend to his commitments—I was trying to be strong. After tests confirmed a kidney stone and a kidney infection, and after receiving IV antibiotics, to my relief, I was discharged. Without a car to drive myself home, I wandered the hospital after stopping at the pharmacy, waiting for Aaron to finish and come pick me up.

A hospital during the holidays is an interesting place. In the midst of suffering—patients arriving and leaving with varying levels of anxiety, pain, and sadness—there are Christmas trees, ribbons, and people dressed in holiday cheer. The contrast can feel jarring. In all the noise and festivity of Christmas, the quiet plight of the sick can feel overlooked.

But as I waited, I witnessed something unexpected.

Near the main entrance, a group of hospital employees—some wearing Santa hats—gathered around the information desk. They were visibly excited, anticipating something. A delivery was coming. “There are thirty-two more boxes!” someone exclaimed. “That’s about sixteen hundred total!” another replied. Their faces lit up with amazement.

Soon, volunteers arrived pushing carts stacked high with boxes. Inside were children’s books—gifts for children spending the holidays in the hospital. But the books weren’t the real gift.

The real gift was written on faces. The volunteers delivering the boxes and the staff receiving them glowed with joy, excitement, and hope—hope that their efforts might brighten someone else’s holiday, even in a small way.

Last year, to mark the first anniversary of my heart transplant, I donated fifty satin pillowcases to the hospital for transplant patients. Each one was wrapped with a bow and included a note of encouragement—something I knew would have lifted my own spirits during my hospital stays. I never saw them distributed. I never received a thank-you. Yet the act of giving brought me immense joy. The benefactor became the recipient.

But acts of charity during the holidays don’t have look grand—humble, simple things work just as well. Things as simple as patience in a checkout line, anonymous generosity, choosing compassion when it would be easier to rush past all help in little-yet-persuasive ways. These moments don’t erase pain or sickness, but they remind us that gentleness still exists. And sometimes that’s all we need to restore our hope. Because sometimes hope doesn’t come from summoning strength within ourselves, but from witnessing how willingly others offer theirs.

The holidays are often portrayed as a dreamscape of cheer and togetherness. But in real life, holiday magic doesn’t always arrive as excitement or optimism. More often, it arrives quietly—in kindness witnessed when you are still enough to notice, in generosity unfolding around you, in the trust that this moment is not permanent even when you cannot yet imagine what comes next. Hope doesn’t require certainty; it only asks for openness.

Here I offer permission to be human. If this holiday season finds you ill or feeling down, let that be okay. Let it be a chapter, not a verdict. Care for yourself in the ways you can. Accept care when it is offered. Release the idea that you must perform joy to deserve this season. Even now—especially now—you are allowed to be human.

And when you look ahead, past the decorations and the calendar and this heavy moment, remember this: the light you are waiting for does not disappear when you are sick or sad. It shows itself in generosity, in patience, in quiet acts of care. The holidays will pass. Your strength will return. Lighter days are ahead. Hope is already here, quietly at work, even when all you can do is rest.

A Story For Christmas

n the very cold, very brutal Pennsylvania winter of 1983, my parents found themselves looking for a new place for our little family to live.

My stepdad had been working as a farm hand, repairing farm and milking equipment for an old couple that owned a dairy in the tiny town of Shippenville. As part of his pay, we were allowed to live in a small, nearly dilapidated old house with a sagging roof and rotting porch that was next to the barnyard on their property. As awful as the house sounds, it was charming to me. The surrounding countryside was nothing short of Idyllic in my childhood memory, with horses and cattle grazing in bucolic fields. My older sister and I helped out on the farm by assisting with the milking every morning and afternoon, tending to the chickens and turkeys and pulling weeds in the vegetable garden. We played for hours in the barn, jumping from the haylofts and playing hide-and-seek. We loved it there as children. We were sad to be leaving.

Unfortunately, earlier that fall, after a gloriously warm summer, we were awakened in the middle of the night by the bright glow of fire outside. The three-story barn was in flames—fully engulfed. Despite the best efforts of the local fire department, the barn burned to the ground. The farmer had just finished hauling in all the hay and oats from the field. Despite warnings from my stepdad that the hay was wet and in the warmth should not be stored in the barn, the farmer loaded it into the barn anyway. Large fans ran on the crop day and night to keep it dry and to keep mold at bay. And it had been an electrical spark from one of the fans that ignited the fire that burned the barn and everything in it.

The crop of hay and oats, gone.

Left without a barn, the tools and crops it housed and the milking equipment adjacent to it, the old farmer had no way of making money. He was forced to sell the farm and land. Including the little house we lived in.

Finding housing in a crunch in such a rural community took great providence, and by December of that year, my parents felt providence was certainly not smiling on them. I am sure desperate prayers were said.

Finally, on the day before Christmas Eve that year, they found an apartment for rent in the neighboring town of Seneca. The apartment was on the second floor above a small factory that made cemetery vaults—not exactly home-sweet-home. But it was good enough for us, for a time.

The next hurdle that needed jumping was moving our family and all our belongings on the night before Christmas Eve. We had no family near us as western Pennsylvania was not our native home. My mom had moved my sister and I from Utah to Pennsylvania after her divorce 5 years earlier. And after she married our step-dad, we had basically lived like nomads, moving wherever there was work. While we had a church community, our congregation was small and geographically spread all over the area. We were poor, and nearly alone. And we only had one little car to our name. There was no U-haul rental nearby. We had access to neither truck, nor trailer.

To top it off, a storm had blown in. That area was prone to lake effect snow and brutal Canadian winds. The wind chill on that night was 60 below zero.

It sure didn’t feel like Christmas time. And I remember being disappointed—worried even. We had no Christmas tree, no decorations, no tinsel, no gifts, and no angel on top of the tree to help us remember Christ. I feared there really would be no Christmas.

We spent the majority of that day boxing up our things, taking apart furniture, basically working and moving and moving and working and only pausing now and then to ponder how we were going to get everything to our new place with only our little car to take it all.

I’m not sure how this happened—being a child at the time, most things just seemed to miraculously come to pass. Now, through the lens of adulthood, I recognize my parents must have prayed and put out a call for help—and then prayed some more. But somehow, a decent number of farmers from the surrounding community, began pulling up unceremoniously in front of our little old farmhouse. They brought their trucks, trailers and hay wagons and, in the bitter cold of that night, loaded up our belongings and carried them to our tiny apartment in the neighboring town more than a 30 minute drive away.

But they didn’t stop there. Despite the ice and cold, they then unloaded all the boxes and furnishings and carefully carried them up the long, narrow flight of stairs and placed them in our new home, before returning to their own homes and own families to finish their many chores and prepare for their Christmas celebrations.

And then, just to make the holiday a little more Christmas-like, someone, one of those blessed farmers, returned to our apartment with a Christmas tree. I still remember that tree. To me, with the recollection of a child, it was tall and fat, and sitting on the very top was the most beautiful angel smiling down on us, reminding me of heaven and the true meaning of Christmas. That tree and the angel on top magically drown out those feelings of worry and disappointment I had had earlier. The memory lasts to this day.

Even though Christmas two years ago—the year of my heart transplant—was truly miraculous for our family, filled with more service than we could ever hope to repay and forever sacred to us, the Christmas we spent in Seneca, Pennsylvania will always stand out. That was the year I learned that the greatest gifts are those that remind us what truly matters: hope, kindness, and the light of Christ we carry within.

In the words of Jeffery R. Holland, “Not all angels are from the other side of the veil. Some of them, we walk with and talk with—here, now, every day. … Indeed, Heaven never seems closer than when we see the love of God manifested in the kindness and devotion of people so good and so pure that angelic is the only word that comes to mind.”

May we each, this Christmas, be that angel for someone else. May we follow a prompting, answer a call, have the faith to say yes, and serve each other as Christ serves us.

The Toxic Ex-Boyfriend

I have this toxic ex-boyfriend, and he haunts me. In fact, I run into him almost every day. It’s becoming problematic.

We were first introduced in elementary school. I hated him then. I couldn’t understand the kids who liked him—mainly the boys in my class. He was always chosen for all the teams, and all the boys loved to play with him at recess. I personally never understood the attraction.

In junior high, he started drawing the attention of some of the girls. Not me, however. I tried steering clear of him, but no matter how hard I tried, it seemed we were always partnered up in gym class. It was torture.

In high school, my sister started hanging out with him a lot. She and her friends spent quite a few summer mornings and Saturdays with him. Their time together looked so easy—so fun and refreshing. Though I didn’t understand at first, you could say I was intrigued; maybe there was something there. Maybe if I gave him a try, I’d understand the appeal. And so I began a flirtation, if you will. Sometimes I’d join my sister and her friends when they’d hang out with him on a Saturday, hoping maybe there’d be a spark between us. He was kind of popular, and I wanted to like him and really wanted him to like me.

Let me tell you, in the beginning it did not go over well. I guess you could say our chemistry was lacking. Yet time and time again, we’d continue to ask each other out—I’d chase him, he’d chase me. Around and around we’d go. This went on for years, until one day it all clicked, sometime after the birth of my first child.

Most weekdays I’d set aside at least a little time for just the two of us, usually in the morning after my husband left for work. I’d put my son down for a nap and sneak off to spend time with him. But there were other times when I’d bring my son along, figuring that the early introduction was somehow good for him. Our relationship was easy and flourished then. Those mornings were so fun; sometimes I’d add an afternoon. With just one young child and so much free time, I put a lot of focus on him, and our relationship was strong.

But with the birth of each additional child, our dates became more difficult. I couldn’t just put a child down for a nap or bring one kid along to meet up with him. Suddenly, I’m juggling schedules. I’ve got preschool and soccer carpools. I’ve got toddler meltdowns and orthodontist appointments to work around. Timing things got harder and harder. Sneaking away to find time with him became more difficult. Our time together became more precious, so when I did find time, I wanted to really make it worthwhile. I hung on longer, or more intensely—anything to make the time more meaningful.

Eventually, I found ways to add dates to the weekends. I might sneak away for a Saturday morning with him. And that’s when things became torrid. That’s when my friends found out.

Once my friends got involved, we began planning weekend getaways. Aaron managed the kids while I went away with my friends and met up with him. I still feel guilty admitting that those were good times. I felt wild and alive. Adventurous. I was another person away with him and my friends. We ran free, and we laughed until our breath caught in our throats and our heads throbbed. And at the end of the trip, we almost felt hung over from the experience. But there was a price to pay.

This went on for more than twenty years. Over two decades of our love affair began taking a toll on me. And Aaron began noticing.

I began feeling tired. A lot. But this boyfriend demanded my time. And, oh, how I wanted to spend that time with him. I felt young with him. He validated me in a way nothing else did. But eventually, he broke my heart—completely destroyed it.

Wouldn’t you know it, as soon as my health began to fail, he left me high and dry. There was a part of me that thought I could hold on to him until I was an old lady, that I’d go to the grave with him by my side. At least I’d be able to tell my grandkids about my love affair, and they’d blush and whisper about it to their friends, secretly proud of their grandma.

Nevertheless, when my health went south, I came to peace with ending our relationship. I’m a happily married woman of a certain age, I figured I didn’t need him anymore. Believe me, I mourned the loss—I grieved, for sure. I felt broken inside. We had been together for so long, he had become a part of my identity. But I did blame him—his toxic nature. And there was a piece of me glad to be rid of him. I put that relationship firmly in the past.

But then my heart transplant surgeon brought him up, named him by name. Said he’d like to see me get back together with him. Perplexed, I turned to my husband, who sat beside me. He nodded his head in agreement. “I think you should try again.”

And so, after completing thirty-six sessions of cardiac rehab, I laced up my running shoes and tried again.

With a new, young heart and with ARVC in the rearview mirror, I jumped on the treadmill and began cranking up the speed. I started with just a few awkward, toddler-like steps for only thirty seconds at a time, eventually working up to running a full mile. My stride was clumsy, my cadence slow. But I did it.

Did I love it? No. In fact, I’d say we’re back where we started, with me watching all the runners around me making it look so fun and so easy, making me wish I liked it. Just like those days in elementary school, those boys at recess who ran with so much freedom and ease—at least now I know the feeling. My sister and her friends in high school who made their Saturday morning hill runs seem fun—now I understand the appeal.

I know I’ll try and try again. Some runs will be good, and other runs will be horrible. I might chase him; he might chase me. We might go around and around like this for a while. I don’t know if my love affair with running will ever be rekindled. But I hope one day to tell my grandchildren about my love affair with running and make them proud of their strong, resilient grandmother.

He Swept My Floor

My son is currently facing one of those big life choices: which path to take after college. He’s pre-med, but as we all know, while many are called, few are chosen. Not everyone who intends to go to medical school will actually find themselves on that journey. He’s also considering applying to a PA (physician assistant) program. Whatever path he chooses, his goal is the same: to work with patients in healthcare. And he’s diligently preparing himself now, no matter what the future holds.

Recently, someone close to him said, “We’ve decided you need to go to medical school because one day you’ll regret not going all the way.”

I bristled immediately. While I believe my son is smart enough to get into medical school, if he chooses a different graduate program, I will be proud of him. I would never see him as not having gone “all the way.” And here’s why: my son’s motivation for entering the medical field—at least in part—is to have a positive impact on the lives of others. He doesn’t need to be an MD to do that.

I may not know everything, but I know a lot about being a patient. I’ve spent my fair share of time in hospitals, clinics, ERs, procedure rooms, and recovery rooms. I’ve interacted with everyone from surgeons to nurses, CNAs, patient care techs, therapists of all kinds, pharmacists, and imaging technicians. I’ve been impacted both positively and negatively by all of them—no special credentials required.

I recall one early admission in the ICU. It was terrifying. They were listing me for my heart transplant while simultaneously trying to stabilize my erratic heartbeat. I was bewildered, scared, and miserable—and to top it off, my ICU room had no windows, no privacy, and no toilet. The cardiothoracic surgery team came to meet me. I don’t remember much from that meeting, but after everyone else left, one PA stayed behind. With tears in his eyes, he said, “What you’re going through is very scary. We’ll do everything we can to help.”

Another memory comes from a particularly rough pre-transplant clinic visit—perhaps when I was told my transplant listing would be paused while I underwent treatment for thyroid cancer. I broke down in tears. I’d been stoic until that moment, but everything spilled over. My fake eyelashes fell off. My nose ran. It was embarrassing. The doctor hugged me—a gesture unusual for physicians, at least in my experience. Then, that weekend, on her own time, she called to check in on me.

Even now, I sometimes dread my visits to the cardiac clinic. I occasionally leave feeling gaslit or hopeless. The clinic isn’t my favorite place. Yet, even there, I’ve noticed small acts that matter. A medical assistant compliments my outfits and tells me I look nice. That simple kindness motivates me to show up with a smile, to demonstrate that I am worth supporting.

I’ve had nurses hold my hand, patient care techs remember my name and greet me with a smile, echocardiogram techs treat me like a human being, and doctors treat me more like a friend than a body in a bed.

One of my favorite stories comes from a hospital stay while being treated for Lippy. I was trying to make the best of it, to find silver linings. There was a housekeeper who swept my floor almost every day. I could tell by the shine in his brown eyes beneath his mask that he was genuinely happy. Aaron, ever the conversation starter, asked where he was from. He paused, smiled, and shared his story.

He was a refugee from Eritrea in East Africa, who had spent 14 years in forced military service and 15 years in a refugee camp in Ethiopia before coming to America. He had lived in Seattle before settling in Salt Lake City. He had a wife and five beautiful children, proudly showing us photos. He bragged about his daughter, who had earned a scholarship to a local college.

Then, humbly and tenderly, he spoke of his son, whom he thanked God for before recounting how his son had become involved in a gang and tragically lost his life to senseless violence at a nearby trailhead. I remembered hearing about the incident in the news. My heart broke for him, this unassuming man.

“I do not judge,” he said. “I thank God; he was a gift.”

In that moment, this man—through his vulnerable authenticity—made me feel seen, valued, connected, and human again. And perhaps, in that connection, I found the medicine I truly needed to begin healing.

The lessons I take from these experiences are clear—and there are always lessons:

Never let adversity dim your light.
Never let your circumstances interfere with your ability to connect with another person or to act on what you feel called to do.
Life itself is the best course in kindness, the best training in compassion.
No credential is required to be a decent human.
And there is no gatekeeper to having a positive impact on someone’s life.

It’s not about titles or degrees. It’s about showing up, being present, and living with empathy. Any human can do that.

Deep in the Sweet Melancholy

In the movie Elizabethtown, the character Drew Baylor stands in his aunt’s kitchen with a group of new-to-him relatives following his father’s viewing. While visiting estranged family in Kentucky, Drew’s father had passed away from a heart attack and Drew was sent by his mother and sister from Oregon to take care of the funeral and bring his father’s remains home. Chaos ensues. In this particular scene, the night is warm, the light is low, they’re obviously tired both physically and emotionally, yet they’re smiling as they revel in a sweet melancholy that often follows traumatic life events.

I love this scene. It calls to mind a difficult-to-describe sentimentality that you have to experience to understand. It is this almost peaceful longing, a reverent recall of difficult times. As if the slow let down that happens following the adrenaline rush and fear, provides its own serotonin release, cementing a beautiful nostalgia all its own.

This is what my family experienced in the month following my heart transplant.

As you recall, my miracle phone call happened on December 14th 2023, with surgery taking place in the wee hours of the morning of December 15th–just in time for the holidays. I had a record recovery and left the hospital eight days after surgery—it would have been seven but I begged for one more day to learn how to manage my medications and get a hold on my blood sugars. Nevertheless, I was released from the hospital on December 23rd—just in time to celebrate Christmas with my family.

Coming home from the hospital felt a lot like bringing home a newborn infant. For me it meant a whole new way of life. While I had gone through a lot of training on medications and things to watch for, I felt unprepared and scared. My body did not feel like my own. I was weak and sore and dependent on everyone around me—something I wasn’t used to. Even showering was a new experience with procedures and regimens that needed following and for which I needed assistance. It was bewildering.

As I was so fresh from transplant, I basically had no immune system. My transplant team asked us to keep visitors to a minimum. We decided to basically act like it was the 2020 pandemic again and go on lockdown. Our married daughter came back home with her husband, our college-age sons moved back in (it was winter break anyway), and we hunkered down. Even though surgery had gone well and my recovery was, for all intents and purposes, on track, we were still taking things day by day.

We fell into a rhythm of sorts: wake up, take medicine, check all my vital signs, make our way to the family room, take medicine, eat cheese (seriously, we ate six pounds of cheese), take medicine, assemble legos, take medicine, share a meal, take medicine, make the strenuous journey up the stairs to my room and take all of my vitals again, take medicine, make our way to bed for a restless night of worry and night sweats (oh, the joyous transplant medication side effects).

There were the inevitable excursions out to the lab, the pharmacy, or to the hospital for right heart caths and biopsies. I hated those times. Those days were long for me. I could barely walk across a room, let alone last an entire day navigating the halls of the University of Utah hospital. I was expected to arrive, fasting, at the hospital usually before 7:45 a.m. for my then weekly biopsies to check the progress of my heart’s healing and monitor any signs of rejection, and we wouldn’t arrive back home before 5:00 p.m. Thankfully, neighbors and friends often provided dinner for our little tribe on those harrowing days.

For me, just the like the early weeks of motherhood, the days were simple but hard.

The holidays came and went and we existed in our own little bubble.

No Christmas Eve parties. No family Christmas dinners. No Sunday services. No New Year’s Eve party. Just the seven of us gathered around the six-pound block of Muenster and the Titanic lego set.

The thing is, however, when we each think back on that Christmas and holiday season we each remember it with this deep, sweet nostalgia for the melancholy of that time. And though this is just my retelling of that season, we talk about it in a similar way. While we’re all grateful to have moved on and healed from that winter of 2023-24 we all express a longing, if you will, for those simple-but-hard days.

There can be a pulling together, a unifying in times like these. Where difficult events often force change—change in our lives and changes in ourselves—nostalgia pulls us back together. Whether it arises through grief brought on by loss or through the emotional release that takes place following periods of great stress, this sense of exhausted tranquility helps us process intense feelings into something–well, transcendent.

Call it a coping mechanism, call it delusion—call it what you will—but I call this experience a blessing for enduring well the hardships life throws our way.

I can recall one other time when I felt deep in this sweet melancholy before. It was after the passing of my brother. At the end of a long, emotional day of funeral planning we had gathered in the office of his home to go through some papers and photos. It was a warm summer night, not unlike that scene from Elizabethtown. We ended up crying and laughing, laughing and crying into the night, remembering better, easier, more innocent times. Recalling times when laughter came without tears, when memories were either good or bad, when we were uninformed on the nuances and complexities of adult relationships, and we simply would not have been able to fathom a world where joy and sorrow could exist side by side, and the understanding that we are all better for it.

A world before we knew the longing for simple-but-hard times—and the joy of a six-pound block of cheese.

But I Didn’t Like My Face

I’m no Pollyanna, but I wouldn’t consider myself a pessimist either. In any situation, given time to think, I feel I have the ability to see both the good and the bad. When I was listed for transplant, Aaron gave me this cute little trinket—a cloud-shaped tchotchke engraved with the words Always find the silver lining. And that has become a mantra of sorts.

I decided early on that I was going to use the opportunity of receiving a heart transplant as a chance to improve myself—to truly have a change of heart. I often fantasized about waking up from surgery, or at least coming through recovery, with this grand new perspective that granted me wisdom, patience, kindness, and the ability to find a well of joy in life that was so often more difficult to find before. Receiving this second chance at life, this priceless gift, would make me a better person. And I tried—I really tried.

But it’s an uphill battle.

I had been warned about the nasty-but-necessary steroid prednisone. The one that makes you angry, tearful, sleepless, hungry, jittery, giggly, ravenous, and basically causes you to climb the walls. And for me, it did all of those things. I hallucinated (ask my family about the jelly-headed aliens and the Christmas light parade); I stayed up all night writing and rehearsing my TED Talks—plural; I broke down in tears in front of the poor cafeteria worker when I was reminded the quesadilla didn’t work with my dietary restrictions, just to name a few of my adventures on prednisone.

And then, one month post-transplant, I had my first rejection episode—a condition where the immune system attacks the transplanted organ. I was called back to the hospital for an extra blast of IV Solu-Medrol, an intense steroid. After a three-day stay, I left the hospital and waited for the inevitable… moon face.

I would place a picture here, but I don’t want to. Just Google an image of Alec Baldwin.

I tried everything to take the swelling down: gua sha, red-light therapy, lymphatic drainage, depuffing masks—you name it, I’ve dropped dimes on it. To no avail.

I was so sad at what my life looked like, I cried, “I am a monster!” Aaron hugged me and assured me, just like everyone else had, that it would go away soon.

It took about a year for the swelling in my face to go down—at least in my opinion. It took just long enough for me to have a recurrence of thyroid cancer that required surgery, which threw me back into rejection—again. Another blast of steroids, this time outpatient, led to another, albeit slighter, moon-face period.

You don’t even have to wonder—I’ll save you the energy and volunteer that I am, indeed, vain. I’ll admit it. I like to look nice. The first thing I do in the morning is put on makeup. Well, actually, I brush my teeth first, but makeup comes before I leave my room. Even so, I tried finding the silver lining: “Look how the prednisone puffiness has almost erased my fine lines and wrinkles. Maybe I’ve found the fountain of youth!”

Aaron would say, “You’re still beautiful to me, and you don’t look anything like Alec Baldwin.”

Friends kindly told me they didn’t even see a difference. Yeah, right.

And, of course, I heard the inevitable: “It could always be worse.”

Never—I repeat, NEVER—say these words to anyone, especially a transplant patient.

It got worse.

In June, I bit my lip. Who hasn’t? It seemed innocuous at first. But over the passing days, that bite turned into a canker. I’m no stranger to cankers—especially since transplant and being put on the immunosuppressant sirolimus. I didn’t think much of it and just steered clear of the right side of my mouth while eating for a while. But things got worse—in a big way.

Two weeks later, we flew to Ohio to help our daughter move from Cleveland back home to Utah. She met us at a hotel with her car loaded with boxes, and we began driving across the country. My canker hurt, and I was mainly eating soft foods and shakes to avoid injuring it more. Nevertheless, while stopped for the night in Nebraska, I woke up in excruciating pain. I went into the bathroom of our hotel room to inspect my lip. It was so swollen I thought the skin might actually split. The canker itself was about the size of a corn kernel, but the lip was hugely swollen, and I began to worry.

Here I was, literally in the middle of nowhere Nebraska, far from a hospital, a full day’s travel from my transplant team, and I didn’t know if I had some kind of rare, raging infection or what. I kept ice on it the next day as we made our way home, where I got myself to Urgent Care as quickly as I could.

Over the next few days, I went back and forth to Urgent Care and back and forth on the phone with my transplant team, trying to figure out what was going on with this mouth ulcer—until I found myself in the hospital with the world’s worst canker sore, which I had begun calling Lippy. It was so big it deserved a name.

Again, I would place a picture here, but I don’t want to. It makes me sad. But you can find it on my Instagram. Just imagine a gnarly mouth sore about the size of a large gumball, with swelling into the cheek.

I was in and out of the hospital over the course of two weeks as Lippy got worse and worse. I couldn’t eat due to the intense pain it caused—anything I consumed had to go through a straw. I couldn’t talk, and I frequently drooled. At the same time, I was struggling with terrible migraines. And every professional and specialist at the University of Utah looked at me with pity and said, “I have no idea what this is, but it sure looks bad.”

These are words nobody should ever hear.

I was tested for a myriad of infectious diseases, parasites, amoebas, autoimmune diseases, even multiple forms of cancer. I gave blood samples, stool samples, tissue samples and biopsies, and had a CT scan. But in the end, the doctors were split: it was either a bad reaction to sirolimus or a reactivation of Epstein-Barr virus. Either way, the treatment was time to heal and—yes, you guessed it—more steroids.

I was struggling.

My heart transplant had been nothing short of a miracle—I was truly grateful. And in the grand scheme of things, I’d been blessed with a fairly easy time and few setbacks with regard to transplant. Others really did have it worse. I knew this to be true.

But I didn’t like my face.

And I hated myself for it. I wanted to like myself, inside and out. I wanted to be 100 percent happy and grateful all the time post-transplant. But here I was, regretting everything. If life post-transplant meant constantly worrying about cancer, infections, rejection, and hating what I looked like, maybe I’d made the wrong choice when I accepted this heart. Ouch—that hurts to admit.

At the end of the day, the only choice I had was to sit it out and wait. Wait for Lippy to heal and for, eventually—hopefully—the swelling in my face to go away. And after two months, Lippy did pretty much go away, except for the scar tissue left behind. The puffy face, well, that may just be my new normal, at least in part.

I think it’s fair to say that two contrasting things can be true at the same time. I am finding that I can be grateful for my transplant and also be upset about some of the hardships it brings to my life. I can find joy in celebrating life’s milestones I get to witness—like my son’s wedding and the birth of my first grandchild—and still bemoan the chronic condition I now live with. I can be grateful for life and still not love my puffy face.

What I’m learning is that change is a choice that comes only by consistently showing up with gratitude. That new perspective and change of heart I hoped for with my transplant is up to me—and that it’s also perfectly acceptable to see the clouds along with the silver lining.

In Good Hands

Sit with me for a minute, will you, and let me tell you about a dream I had that wasn’t really just a dream at all.

First, a little backstory. We were driving through Salt Lake City when Aaron’s phone rang. It was a friend from work who had a connection to a PA working with an electrophysiologist—a cardiologist who specializes in heart rhythm disorders—who could fit me in for an appointment quickly. Desperate, we accepted the next available opening.

Unbeknownst to us, we had agreed to see the very doctor who had treated me 25 years earlier. I hadn’t liked him then—let’s just say his bedside manner was lacking—and sadly, we did not like him now either. Nevertheless, within a month, he diagnosed me with ARVC, placed an ICD, and referred me to an interventional cardiologist for follow-up care. Over the next two months, Aaron and I both had misgivings; we woke up in the middle of the night feeling I needed a change of providers.

At that time, I was receiving care at IMC in Murray, Utah. Our insurance covered most services, but some things required referrals elsewhere—a frustrating hassle. There were other issues, too: a hospital admission where my doctors could not be reached, test results that never came, and a general sense of lack of urgency regarding my care. Eventually, we made the switch to the University of Utah—a decision that pleased our insurance but left us uncertain.

That’s when I had the dream.

I was in an empty banquet hall with windows overlooking the city. It was just my family and me when in walked Russell M. Nelson, then president of the LDS Church and a former renowned heart surgeon and researcher, and his wife. He sat next to me on a padded window seat, placed his hand on my knee, and said, “We are aware of what’s going on, and you are in good hands.”

That was it. That was the entirety of the dream. Yet I woke feeling warmly comforted.

Fast forward a few months and several traumatic events, and I found myself waiting for a heart transplant. At the University of Utah, three surgeons performed heart transplants, and the surgeon on the day of surgery was the “luck of the draw.” Patients are encouraged to consult with one or more surgeons while waiting. I met Dr. Selzman during a particularly grueling two-week admission following a VT storm—an episode of uncontrolled ventricular tachycardia. I was informed I would be listed for a transplant and then bombarded with the pre-listing battery of tests. I met countless specialists, residents, med students, fellows, technicians, social workers, and nurses—their faces blurred together, and Dr. Selzman’s was just another among many.

I met another surgeon, Dr. Goodwin, during the following 18 months of my waiting. He was friendly, quiet, confident, and passionate about his work. Aaron and I felt reassured that we were in good hands.

Then, on December 14, 2023, the call finally came: “Fiauna, we have a heart for you. Are you ready?”

Nothing can prepare you for that call. No matter how many times you rehearse it in your head, checklists you’ve crossed off, bags packed, or prayers said, when it comes, you are struck speechless. We made phone calls, gathered our family, had a small Christmas gift exchange—because we had no idea what life might look like on the other side of this day—and headed to the hospital.

During pre-op, scheduled in the early hours of December 15, the staff repeatedly told us how lucky we were because Dr. Selzman was on call. Their words barely registered. I felt dizzy, nauseous, and weak. Anxiety consumed me. Soon, a surgeon I had barely met would cut into my chest and remove my most vital organ. And if things didn’t go well…

I was acutely aware that somewhere, for some family, this was the worst night of their lives.

As the anesthesia team inserted an arterial line into my arm, my blood pressure plummeted. I felt myself losing consciousness and prayed silently: “Heavenly Father, please hold me.”

I have no recollection of what happened next, but Aaron says Dr. Selzman walked in calmly, said, “Oh, I know how to fix this,” and wheeled me to the operating room.

Later, after recovery, while walking the cardiology unit, I saw a plaque on the wall bearing a picture of President Russell M. Nelson embracing Dr. Craig H. Selzman.

Remember my dream, where President Russell M. Nelson told me I was in good hands? Had it been just a dream, or did President Nelson somehow know I truly would be?

In 2018—five years before my transplant—the University of Utah created the Dr. Russell M. Nelson and Dantzel W. Nelson Presidential Chair in Cardiothoracic Surgery, a professorship awarded to Dr. Selzman. Five years later, President Nelson donated his professional journals to the University. In a meeting with dignitaries from around the world, Dr. Selzman shared what he had learned from President Nelson. Then, in the October 2025 General Conference of the Church of Jesus Christ of Latter-day Saints, Elder Dale G. Renlund, also a retired heart surgeon, shared a story about Dr. Selzman:

“Dr. Selzman recounted that, four days before being appointed to the professorship, after a long day in the OR, he learned that a patient needed to return to surgery. Fatigued and disappointed, he resolved to act differently. President Nelson had been known for his composure, respect, and patience, and Dr. Selzman determined that his actions in the operating room would emulate those qualities. Though already considerate, he chose to be even better, mindful of the impact on his team.”

Almost two years have passed since my transplant, and over a year and a half since my last follow-up with Dr. Selzman. There is a strange intimacy in trusting someone with your life, someone who has held your heart in their hands. Yet, the day-to-day of a surgeon’s life moves on, leaving behind a subtle emptiness for the patient.

Healthcare often makes us feel like a number, not a human being, and our stories can feel invisible. This is not uncommon. I know firsthand the long hours, low wages, and lack of support in the healthcare profession. But feeling unseen can make self-advocacy difficult, and self-advocacy is vital to good outcomes. Feeling safe and valued matters.

Elder Renlund’s talk illuminated this for me. Before surgery, I had understood the professional significance of Dr. Selzman’s award. That was meaningful. But learning about the character lessons he drew from President Nelson—composure, respect, patience—transformed everything. I felt seen, I felt safe.

I realized then that my dream had not been solely about easing anxiety or reassuring me about my choice of surgeon. It was a whisper of love from a Father in Heaven who knows all things and prepares a way. From the start, I had been held in the very best of hands.

His hand is in all things. If you can’t see it, look for it. What you seek, you will find.

And that is the story of a dream that wasn’t just a dream after all.

The Five Mile Trail

Today I walked five miles.

The sun was shining, and the air held that perfect autumn-day crispness. We had the trail mostly to ourselves—Christine, Millie, and me—and we talked freely, filling the miles with whatever drifted into our minds.

Five miles. What a privilege.

At one point, we passed a neighborhood friend, Megan. She commented on how fast we were—and we were, moving along at a pace of fifteen or sixteen minutes per mile. Without missing a beat, Millie and Christine both said, “Well, Fiauna has a new, young heart. It wants to go fast!”

I have a 21-year-old heart.

That’s a fact that still brings me to tears. My donor was only nineteen years old when her life ended and her heart was donated to extend mine.

After my transplant, while I was still in the hospital, the social worker came to my room during a rare moment of privacy and asked if I wanted to know what little information she was allowed to share about my donor. Surprisingly, I had to think about it.

Did I really want to know?

It seems like such an obvious question, but after everything I had been through, I had to ask myself how much I truly wanted to carry. That information felt sacred somehow. Holding any knowledge at all felt like a responsibility I wasn’t sure I was capable of bearing. It’s hard to explain exactly why. There are good things and hard things that come with knowing. We are all just human, after all, and sometimes the magic you hope and pray for can also break your heart.

While I was waiting for transplant, I heard all the anecdotes about organ transplants and personality changes—believe me. My father-in-law shared, more than once, a story about a man in his church who received a heart from a thirteen-year-old girl and went on to develop her personality traits, right down to an uncontrollable case of the giggles. While I understood there were logical explanations—medications, trauma, the body adjusting—it still colored how I felt in that moment when I was given the chance to learn about my donor.

When the social worker told me my donor was female and between the ages of eighteen and twenty-four, I couldn’t stop the immediate cascade—no, the deluge—of tears. My own children were that same age.

Who was I to take a heart? To take life, opportunity, learning, and growth from someone so young?

I still haven’t found an answer.

Nine months after my transplant, I wrote a letter and sent it to my social worker, hoping it would eventually reach my donor’s family. I didn’t need a response; I simply wanted to say thank you. It felt like the right thing to do.

Then, the following February—ironically, on the very day I learned my thyroid cancer had returned—I received a letter in return. It was from my donor’s mother.

My donor was Ella.

She was a medical assistant and a nursing student. A dancer. A lover of music. She and her mother were very close. Precious.

There’s something that happens when someone comes close to dying—or, in my case, receives a heart transplant. You feel a responsibility to live an extraordinary life, to somehow make the second chance, the gift of an organ, worth it. I’ve wrestled with this more than I care to admit.

I don’t want to go back to college and complete a nursing degree in her honor. I don’t feel healthy enough to run a marathon or climb a famous fourteen-thousand-foot peak. Maybe someday I’ll create a charitable trust or do something meaningful in the realm of organ donation.

But for now—for today—I will walk five miles.

I will breathe in the crisp autumn air and feel the steady rhythm of this 21-year-old heart. And that will be enough.