health – Witness Marks

Worthy of Saving

I was here, and then I was gone.

An entire month missing.

Don’t be alarmed. It’s not uncommon for me to lose all motivation during the winter and quietly quit everything for a while. And that’s exactly what I did.

Here’s what happened: I had constructed a picture in my mind of what life after my transplant would look like. After celebrating my two-year transplant anniversary in December, it became clear to me that the image I had painted was not going to come to fruition. That realization slowly deflated me. I lost motivation. And for a brief moment, I lost a little bit of hope.

It’s difficult for me to admit this, but maybe admitting it will help someone else. So I’ll set my pride aside and offer this confession: I thought my heart transplant would somehow make me stronger, faster, sharper, more inspiring—a more dynamic version of myself. For two years, I’ve pushed myself physically to gain strength, speed, and endurance—to no avail. I suspect age plays a role, along with a long list of medications and surgical side effects.

I’ve tried to broaden my understanding of the world through reading and learning, only to find that I now struggle with attention and memory. Again, I blame age and medication side effects. I’ve shared my story on social media and in front of audiences, yet I haven’t felt what I expected to feel in return.

At the end of the day, I am nothing more—and nothing less—than a middle-aged woman living in the American suburbs.

But that’s just it.

When I arrived at the hospital for my heart transplant, my surgeon’s objective was to save my middle-aged, suburban American life. He wasn’t attempting to turn me into a superhero. The goal wasn’t to make me bigger or better than I was before, but simply to extend the life I was already living.

That life was worthy of saving.

So why is it so difficult to accept that? Why do I still feel the need to justify my existence by being more than what I am, when “survivor” is already enough?

Perhaps it’s something ingrained in me—the quiet expectations of my upbringing, or messaging of a culture shaped by performance and visibility. We live in a world that celebrates dramatic comeback stories. Somewhere along the way, I absorbed the idea that survival alone is not a satisfying ending—that it must be accompanied by achievement or applause.

But beneath all of that noise, in a quieter and steadier place inside me, I know the truth: I am enough for now. Not because I’ve proven anything. Not because I’ve surpassed some imagined version of myself. But because I am here. Because this ordinary, middle-aged, suburban life was—and still is–worthy of being saved.

And maybe learning to believe that is the new goal.

Just so you know, I haven’t completely given up on my 5K goal. Not entirely. I’ve mastered something I call the “Kitchen 5K.” Most mornings, I put on my running shoes and jog in my kitchen—sometimes running small laps, sometimes just jogging place. It works up a sweat and gets my steps in.

Look, I’m doing what I can do for now. I’ll progress when and how I can.

. . .”Let us run with patience the race that is set before us,” the scriptures say. I’m learning to focus on what is set before me—what I have to work with and what I have to work on for now.

The Gym is not Your Village

To be honest, not much running has been happening this week. I haven’t been feeling great. And around here, when mama doesn’t feel great, nobody feels great—meaning my not feeling great tends to ripple outward, creating a low hum of anxiety for everyone else. Still, I push on with my morning walks with friends. We’re experiencing an unusually mild winter, one that has gifted us many pleasant morning miles. I’m not complaining.

The other morning, our conversation turned to a big change coming to our neighborhood—one that has left most of us feeling disappointed. Maybe worried. At the very least, unsettled. It’s something some of us anticipated, yet still something we’re not happy about: a new development that will inevitably impact our community in ways that make us feel a loss of control.

When we built our home here twenty years ago, community was one of the most important factors in our decision. We were a young, growing family, searching for a safe, family-friendly place where our children could grow up feeling connected. We wanted a village. And a village is exactly what we found.

Over the years, our neighbors have walked alongside us through our daughter’s autism diagnosis, my brother’s sudden and tragic death, my sister’s stroke at thirty-four, my ARVC diagnosis and eventual heart transplant, thyroid cancer, and the loss of our parents—along with the countless mishaps and quiet struggles of everyday life. And we’ve done the same for them. We’ve cried together in seasons of grief. We’ve shown care through meals delivered during sickness, tragedy, or the arrival of a new baby. We’ve celebrated joy-filled milestones side by side. When I need a cup of sugar, a splash of milk, or a teaspoon of baking soda, I know exactly who to text.

That is community.
That is a village.

I don’t know who needs to hear this—though I suspect quite a few people do this time of year—but the gym is not your village. Yes, you read that right: the gym is not your village. I say this as someone who is very much pro-gym. I once had a Pilates studio in my basement where I taught group fitness classes. I speak—er, write—as someone who knows.

Years ago, after a devastating miscarriage, my husband gently suggested I find a new hobby—something to distract me, something that might help me move forward. I certified in Pilates and yoga and began teaching classes in my basement to women in my community. The classes grew. I added High Fitness. Eventually, I was teaching every day of the week. I was incredibly proud of what I’d built. Proud of my participants. Proud of what I believed was a community.

But when the proverbial crap hit the fan and my health forced me to shut down the studio, I found myself unexpectedly alone. It wasn’t the studio participants who showed up with meals, took me out to lunch when I needed encouragement, or sat quietly with me as I gave voice to my grief and fear. It was my neighbors, my family, and my long-rooted friends who did that.

The gym is wonderful for building strength, lifting mood, and connecting with like-minded people. It serves an important purpose. But true community is built through service. A village grows from the steady rhythm of giving and receiving—of showing up and being seen. If you want a village, you must be willing to be a villager: doing the work, offering effort, and investing in others. By and large, people at a gym are there for their own progress, focused on personal goals. They aren’t there for you—and that distinction matters.

When I walk with my friends and neighbors in the morning, I’m stepping into a different kind of rhythm—one shaped by presence rather than progress. The sidewalks and trails bear witness to our grievances, our long-winded pondering, and our unrestrained laughter. Those miles hold our stories. They hold us.

And even as our town changes—even as new developments threaten to reshape the place we love—I’m reminded that a village isn’t made of houses or roads or plans drawn on paper. It’s made of people who stay. People who show up. People who know your garage door code and which soda you like from the gas station.

No matter how the landscape shifts around us, in sickness and in health, this sisterhood, this village, is something I will always carry with me.

The Quiet Joy of Beginning Again

The first official training run for my 5K goal is done. Did I last the full 3.1 miles? No. Did I run the entire time? Also no. But running the entire time is not the point. The point, for now, is solely and exclusively to eventually register for—and complete—an organized 5K. So this morning’s frosty 2.4-mile jog, chock-full of uphill walk breaks, was, in my mind, perfect.

I set out this morning knowing full well that I wouldn’t run the entire time. I planned a route with plenty of hills, focusing on running the downhill portions and briskly walking the uphill parts. It was bitterly cold, hovering right around 20 degrees Fahrenheit. My hands and ears became so numb that I momentarily worried I might do some kind of permanent damage (in packing for our week away, I forgot proper gloves and a hat for running in such cold temperatures).

Regardless of preparation—or lack thereof—slow pace, and shorter-than-ideal distance, I set out this morning to take the first step toward my goal, and I did it.

There was a time when running served primarily as a distraction. A distraction from responsibility, from emotions I didn’t want to confront, and from parts of myself I thought were ugly—not physically, though regular exercise certainly helps with that—but the internal parts of me, parts my personality, that I knew needed change or growth.

It’s true that during runs I often found myself in deep self-reflection. I would revisit interactions, recognize where I had been wrong, and consider what I could have done differently. Sometimes I would pray while running, sorting through hopes and fears, wrestling with mortality, and speaking with the One who could offer the sincerest help. But mostly, running gave me a distraction—albeit a healthy one.

In 2021, when that distraction was taken from me with a diagnosis of ARVC—or ACM, as the kids are calling it these days—I found myself adrift. Where could I turn for peace, sanctuary, or reflection? I had faith, yes, and my faith practices were—and still are—a great source of peace. But the higher forms of worship were not always available to me on demand. Running had been an easy, rewarding outlet, and it wasn’t easily replaced.

Throughout the eighteen months I spent waiting for a heart transplant, the six months leading up to my transplant listing, and the many months of recovery afterward, I turned to several other forms of distraction—some of which I’m not particularly proud.

I tried my hand at designing graphics for shirts and ended up selling sweatshirts with my designs to friends and family.

I explored certain subreddits on Reddit—mostly those centered on criticizing local social media influencers. This one I’m not proud of. Reddit can be a dark place, full of negativity and hatred. I do not, and cannot, recommend this distraction.

As a family, we took to driving around, seeing the sights, admiring mountain views, and exploring neighborhoods we had yet to visit.

We also adopted the pastime of visiting every Parade of Homes our state had to offer. While entertaining—if not exhausting—it led to feelings of emptiness, as our focus shifted toward what our own home lacked and what needed improvement. As such, this became another distraction I cannot fully recommend.

This is not an exhaustive list, but rather a snapshot of where my mind lived for nearly three years. What I learned during that time is this: our distractions become our habits, our habits become our lifestyle, and our lifestyle shapes our beliefs. Choose distractions that enhance and enrich your life—or that move you closer to the life you want.

If you’re in a season of waiting, grief, stress, or upheaval, it’s okay to hit pause. Sometimes moving forward feels too difficult, or even inappropriate. Sometimes simply standing still is the bravest option. And that is okay.

While we all want to shout for joy from the finish lines of our personal races, sometimes we find ourselves waiting apprehensively at the starting line, fully aware of the struggle ahead. There can be joy there too—a quieter joy, rooted in hope and faith, if we choose it. That same place can also become one of bitterness and envy, if we allow it.

Before my transplant—before my heart went haywire—I ran somewhere around twenty races. I may have placed in my age group a few times, but I never won a single race. Winning was never the point. The prize isn’t the trophy, after all.

The prize is who you become in the choosing, in the showing up, in the steady willingness to begin again—one imperfect step at a time. And this morning, in the cold, on tired legs and borrowed patience, I took that step.

Permission to be Human

The holiday season arrives each year dressed in bright lights and confident cheer, announcing itself as a time when everyone is supposed to feel warm, grateful, and whole. Songs insist on joy. Social media posts glow with parties and matching sweaters. Calendars fill with gatherings and traditions. But sometimes this season quietly overlaps with something much heavier: reality—illness, exhaustion, and a sadness that feels out of place among all the celebration.

Being sick during the holidays carries a particular loneliness. Sickness already narrows the world—your body asks you to slow down, to cancel plans, to listen closely to discomfort. When it coincides with a season that emphasizes togetherness and energy, that narrowing can feel like exclusion and loneliness. You may watch celebrations from a distance, physically or emotionally unable to participate. Even minor illnesses can feel larger in December, as if they are stealing something precious and irreplaceable.

There is also the emotional weight of feeling “down” when happiness seems mandatory. Feeling anything less than cheerful during the holidays often brings guilt along with it—the sense that you are wasting something special, that you should be more thankful, more cheerful, more present. This pressure can make sadness feel like a personal failure rather than a human response. It can be difficult to admit you are struggling when everything around you insists this is the season of joy.

And so a cycle forms. When the body is weak or in pain, the mind grows heavy. When the mind is heavy, the body feels even more tired. Days blur together. Things that once brought comfort and excitement—decorating, cooking, visiting—may feel like an extra chore. Instead of anticipation, there is endurance. Instead of celebration, there’s perseverance.

A few nights ago, I woke in the darkness with intense back pain. I rolled carefully in bed, trying not to wake Aaron. He has been especially busy at work with end-of-year planning, and I didn’t want to disturb his sleep. As the night went on, I found myself in pain and needing the restroom every thirty minutes. I had no choice in the matter—despite all my effort, my restlessness woke Aaron. Though I knew what was happening, I didn’t want to admit I needed help. If I was sick and went to the hospital, there was a real chance I could end up admitted. And that would ruin Christmas for the whole family. So, I convinced him I could wait it out.

By morning, I felt better and proudly announced to my family, “I passed a kidney stone last night.” I assumed the worst was behind me. The next day we went holiday shopping, watched a movie, and I cuddled my granddaughter—quietly congratulating myself for getting through that awful night without intervention.

The following evening, after a beautiful Christmas Sunday at church, the pain returned. Slowly at first, then steadily worsening. As it intensified, so too did the realization that I needed help. A fever followed, and the night became a long stretch of pain and discomfort. Again, I tried not to wake Aaron. He had client appointments the next day, along with a Christmas lunch for his employees. How could I interrupt that?

By morning, he insisted on driving me to the emergency room. I urged Aaron to leave and attend to his commitments—I was trying to be strong. After tests confirmed a kidney stone and a kidney infection, and after receiving IV antibiotics, to my relief, I was discharged. Without a car to drive myself home, I wandered the hospital after stopping at the pharmacy, waiting for Aaron to finish and come pick me up.

A hospital during the holidays is an interesting place. In the midst of suffering—patients arriving and leaving with varying levels of anxiety, pain, and sadness—there are Christmas trees, ribbons, and people dressed in holiday cheer. The contrast can feel jarring. In all the noise and festivity of Christmas, the quiet plight of the sick can feel overlooked.

But as I waited, I witnessed something unexpected.

Near the main entrance, a group of hospital employees—some wearing Santa hats—gathered around the information desk. They were visibly excited, anticipating something. A delivery was coming. “There are thirty-two more boxes!” someone exclaimed. “That’s about sixteen hundred total!” another replied. Their faces lit up with amazement.

Soon, volunteers arrived pushing carts stacked high with boxes. Inside were children’s books—gifts for children spending the holidays in the hospital. But the books weren’t the real gift.

The real gift was written on faces. The volunteers delivering the boxes and the staff receiving them glowed with joy, excitement, and hope—hope that their efforts might brighten someone else’s holiday, even in a small way.

Last year, to mark the first anniversary of my heart transplant, I donated fifty satin pillowcases to the hospital for transplant patients. Each one was wrapped with a bow and included a note of encouragement—something I knew would have lifted my own spirits during my hospital stays. I never saw them distributed. I never received a thank-you. Yet the act of giving brought me immense joy. The benefactor became the recipient.

But acts of charity during the holidays don’t have look grand—humble, simple things work just as well. Things as simple as patience in a checkout line, anonymous generosity, choosing compassion when it would be easier to rush past all help in little-yet-persuasive ways. These moments don’t erase pain or sickness, but they remind us that gentleness still exists. And sometimes that’s all we need to restore our hope. Because sometimes hope doesn’t come from summoning strength within ourselves, but from witnessing how willingly others offer theirs.

The holidays are often portrayed as a dreamscape of cheer and togetherness. But in real life, holiday magic doesn’t always arrive as excitement or optimism. More often, it arrives quietly—in kindness witnessed when you are still enough to notice, in generosity unfolding around you, in the trust that this moment is not permanent even when you cannot yet imagine what comes next. Hope doesn’t require certainty; it only asks for openness.

Here I offer permission to be human. If this holiday season finds you ill or feeling down, let that be okay. Let it be a chapter, not a verdict. Care for yourself in the ways you can. Accept care when it is offered. Release the idea that you must perform joy to deserve this season. Even now—especially now—you are allowed to be human.

And when you look ahead, past the decorations and the calendar and this heavy moment, remember this: the light you are waiting for does not disappear when you are sick or sad. It shows itself in generosity, in patience, in quiet acts of care. The holidays will pass. Your strength will return. Lighter days are ahead. Hope is already here, quietly at work, even when all you can do is rest.

I’ll Hold That For You

I’ve been pondering lately how most people love a victor’s tale. And, if not, how they then are quick to root for the underdog. If you think about it, more often than not, what catches the attention of most is a story of triumph: of challenges faced, odds defied, and struggles overcome.

It’s true—some people genuinely love a good tragedy. No judgment there. After all, many of the greatest works in literature are tragic at their core—think Romeo and Juliet or Macbeth. If tragedy didn’t strike a deep, strangely satisfying chord in us, Shakespeare’s works would never have endured with such popularity.

But what we really want is a neat and tidy ending. We crave stories that, while compelling, follow a predictable pattern and end tied up with a bow. We want an engaging exposition, a captivating rise in tension, an electrifying climax, and a clear, fulfilling resolution.

In short, we want to be entertained!

Also, we’re uncomfortable sitting in discomfort, even when—especially when—it’s not our own.

So, how then do we do we deal with those whose stories don’t follow a traditional narrative arc with that desirable rise and resolution? What do we do those whose stories refuse to tie up in a neat, tidy bow, that linger in the uneasy space between conflict and resolution? Not yet a triumphant tale of victory, but not quite a tragedy either. How do we support those still waiting for their happy ending?

I was told I was going to be listed for a heart transplant sometime around April 30th, 2022, and officially placed on the heart transplant waiting list on June 14th of that same year. I was initially listed as a status 6, the lowest active level of listing, meaning my wait could realistically last anywhere from one day to one year with the likelihood being closer to one year. I was ready to wait. And my expectation was to learn patience in the process.

But our expectations all too frequently fall short of reality.

All told, I waited for a total of 18 months—to the day—for my heart transplant miracle. And while I certainly learned a great deal a patience, I learned so much more. For starters, I learned that the transplant–what seemed like the very climax of my story–was really just the beginning of another chapter of my story. I also learned that for most of us this journey is an oddly lonely adventure, one stitched together with dramatic highs and lows. Lab results swing like a pendulum, emotions follow close behind, and we find ourselves oscillating between the cold suspense of waiting for test results and the rush of relief when an appointment brings good news. There are heart-pounding moments in the cath lab, yes, but also long stretches of quiet, slow page turning in waiting-room chairs.

But there is rarely a truly satisfying resolution. This story goes on and on—not in the grand, sweeping way of an epic, but simply as an overly long narrative.

I was talking with a new friend, Alison at Bonus Days magazine , someone writing chapters in her own epic journey, and she recently said something to me that really resonated. We were commiserating about the ups and downs of living life post heart transplant and I apologized for unloading a few frustrations when she said, “That’s okay. I’ll hold that for you.”

I’ll hold that for you. What a lovely sentiment.

What I felt in that moment was validation. She took a seat next to me in the waiting room and agreed to turn the next page of this overly long, not-all-that-epic tale I’m writing. She’s agreed to stand by this unlikely heroine while I’m living my main-character moment.

In this space, where not every book is written with a victorious conclusion or a tragic-yet-inspiring denouement, perhaps the part of the story that matters most is not the thrilling accounts of victory or the dramatic scenes of defeat, but the subtle, life-changing character development that takes place between the lines.

Pulling the Goalie

Recently, my husband and I were invited on a weekend trip to hike with friends in Arches National Park. Oh, how I had been looking forward to it! I love hiking almost as much as I love running—that toxic lover of mine. And to do it surrounded by my husband and friends felt like such a gift. We even managed to snag coveted permits for the Fiery Furnace, a maze of sandstone canyons with no marked trails.

Aaron and I made the four-hour drive to Moab almost giddy, ready for a much-needed getaway and some time outdoors before the holidays. We arrived as night fell, greeted our friends with enthusiasm and began making preparations for the next day. We were buzzing with excitement.

After a not particularly restful night, we woke early, divided into carpool groups and headed to the park. We wandered through the Fiery Furnace for hours, climbing over boulders and squeezing into narrow slot canyons, before I began to slow down. Even with peanut butter and honey Uncrustables and Reese’s peanut butter cups fueling me, my energy started to fade. My quads burned in a way that didn’t feel normal. I was more tired than usual and so, so thirsty.

Still, the conversation drifted toward the next hike and tomorrow’s plans. Which arch should we explore next? Who wants to see Delicate Arch?
Me, my heart shouted. I do!
But my mind countered with reason. I needed rest.

That night, as we gathered in the Airbnb swapping stories and playing games, a brutal migraine struck. The nausea, the pounding pain—it all hit at once. Ugh. Why now? By the time Aaron and I headed to bed, I knew I wouldn’t be able to join the group for their hikes the next day. Even though I understood it was the right choice for my body, the sadness settled in deep.

The next morning, Aaron and I made an early retreat and headed home. As we made the four-hour drive we listened to Malcolm Gladwell’s Revisionist History podcast where he talked about hockey. I don’t know anything about hockey. I don’t even like hockey; I’m in no way particularly interested in hockey. But what they were talking about caught my attention. Pulling the goalie. I’ll try explaining.

In hockey, when a team is down late in the game, the losing coach might pull his goalie and substitute them with an extra attacker, so instead of having a full offensive team and a goalie, the coach now has six offensive players and no one guarding the net. It’s a risky move that, while making it easier for the other team to score, also increases the losing team’s chances of scoring a goal and tying the game. The coach is making a calculated risk. Pulling the goalie too early will undoubtedly upset the fans in the short term–possibly in the long term if things don’t go well. But if things play out the way the coach would like, well, then who’s the hero?

I’m the type of person who suffers from Fear of Missing Out (FOMO). When people gather, I want to be there. I want to share in the laugher, get in on the inside jokes, make all the memories. You see, as a child, I spent most of my time with just my sister as my companion and friend. Due to divorce, job changes, moving, and general upheaval, we found ourselves separated from family and frequently changing schools. While teaching me how to adapt and quickly make new friends, I also took on a fear of being left behind.

For three years—while I waited for a heart transplant and later recovered—I was, out of necessity, left out of get-togethers and girls’ trips. I watched friends and family travel and enjoy activities that felt so exciting, yet out of reach for me. From home, it all felt distant, and I often felt lonely and left behind. Even now, during our walks, my friends sometimes reminisce about jokes and stories from the trips they took while I was unable to leave the area. It’s no one’s fault, but hearing those memories still hurts in a quiet, complicated way. Since then, I’ve fought hard—both mentally and physically—to rejoin the world: joining groups, getting active again, going on walks, hikes, and weekends away.

Until I have to pull the goalie.

Another way to explain this—drawing on an example Malcolm Gladwell uses, without getting political—is through America’s gun laws. In many states, there is a legal principle called “Duty to Retreat,” which requires a person under attack to retreat safely, when possible, before resorting to deadly force in self-defense.

It feels counterintuitive, right? Your property, your safety, your family may be at risk—and you’re expected to back away? To rely on retreat as your defense? Yet research shows this is actually safer. In states where “Stand Your Ground” laws have replaced the Duty to Retreat principle, homicide rates have increased, according to Gladwell’s podcast.

I cried when the migraine hit. I cried again when I realized my health wouldn’t let me join the group on another hike. More than anything, I wanted to stand my ground, take some pain medicine, and be right there with everyone in the national park the next day. But logic was the rule of the day. I needed to take the calculated risk of leaving–choosing my health and well-being over my social standing. I might miss the jokes, the memories, and maybe next time even the invitation. But if I stayed, the risk could be far greater.

After my transplant, I had a lot of expectations for myself–most of them centered on participating again. I wanted to run again, to race, to take classes and teach classes again, to join every activity that crossed my path. If people were doing something, I wanted to be right there with them. But life never unfolds the way we picture it. It unfolds the way it will. And so we adapt–something I’ve become very good at. Sometimes the wiser choice is that quiet, calculated retreat. Sometimes we have to pull the goalie. Stepping back isn’t failure. Sometimes it’s survival.

In the end, I’ll be better for having made the call. My friends will be there on Monday with another invitation–I know they will. Hopefully I’ll be well enough to join them. And if not, I have faith that the people who love me will always hold space for me, just as I hold space for them.

The Secret Language of Worry

I’ve heard it said that honesty is the first casualty of illness. I’d argue that honesty is the first casualty in any struggle. I first learned this when I took my then fourteen-month-old daughter in for a developmental evaluation, ordered by her pediatrician after we first noticed her having seizures.

After watching her “play” for nearly an hour, a speech therapist and a registered nurse brought me their assessment: moderate to severe global delays. With a cry trapped in my throat, I asked, “Will she catch up?” The two women looked at each other, glanced at my daughter, then at the floor—never at me—and said, “We’ve seen miracles.”

Was it a lie? Maybe. Maybe not. I don’t know. But I do know it wasn’t complete honesty.

This was my first exposure to the secret language of worry. Since that time, I’ve become fluent in this unique dialect.

It begins with the eyes. They look down and to the right, or over your left shoulder. The face may turn toward you, but the eyes wander elsewhere. There may be a smile, the conversation might seem jovial, but the eyes are elsewhere. Even when truth is spoken, the eyes often drift away.

You will try to gain eye contact, and you might succeed momentarily, but then your attention is drawn to the mouth. Around the lips is a tightness—a subtle stiffness. Perhaps the laugh is forced, the smile lingers too long. In some settings, masks conceal this nuance, but you’ll notice the sound in the throat, the clearing of vocal cords. Even a brief pause before answering can be a tell in the language of worry. What is this person really trying to tell me?

As you become fluent, you notice the subtleties of speaking this language. You learn its origins. Suddenly, you avoid eye contact when your spouse asks if you’re feeling okay. You find something on the floor to study when a friend asks about lab results. Your voice weakens, and your throat clears when a son or daughter asks about a future date. Will you be well enough then? Who even knows?

The secret language of worry exists as a shield, both for the speaker and the listener. We live in a world overflowing with information—sometimes empowering, sometimes overwhelming. The truth can hurt. We carefully release it, bit by bit, gauging the reaction of those we love. Can they hold this worry with us?

In a few weeks, I will return to the hospital for my two-year heart transplant follow-up. They will run labs to monitor my organs—especially my struggling kidneys. They’ll perform a chest X-ray, EKG, echocardiogram, right heart catheterization, myocardium biopsy, and even a left heart catheterization with angiogram to monitor cardiac allograft vasculopathy (I just wanted to flex some medical jargon). As the date approaches, I find myself slipping into the secret language, explaining and justifying my concern repeatedly.

Oh, how I wish I could replace this language with the foreign tongue of celebratory optimism. I rehearse affirmations and speeches of positivity in my mind. But over the years, the language of worry has become ingrained, and it pulls me in too easily. Gratitude helps. Prayer helps. Patience helps. Until then, I practice them all.

If you catch me slipping into this secret language, try to relate. Empty platitudes have no translation in the language of worry; they ring hollow to those fluent in this tongue. Just listen. Listening helps.

In the end, we all speak the language of worry in our own way—it is, after all, a universal language.

He Swept My Floor

My son is currently facing one of those big life choices: which path to take after college. He’s pre-med, but as we all know, while many are called, few are chosen. Not everyone who intends to go to medical school will actually find themselves on that journey. He’s also considering applying to a PA (physician assistant) program. Whatever path he chooses, his goal is the same: to work with patients in healthcare. And he’s diligently preparing himself now, no matter what the future holds.

Recently, someone close to him said, “We’ve decided you need to go to medical school because one day you’ll regret not going all the way.”

I bristled immediately. While I believe my son is smart enough to get into medical school, if he chooses a different graduate program, I will be proud of him. I would never see him as not having gone “all the way.” And here’s why: my son’s motivation for entering the medical field—at least in part—is to have a positive impact on the lives of others. He doesn’t need to be an MD to do that.

I may not know everything, but I know a lot about being a patient. I’ve spent my fair share of time in hospitals, clinics, ERs, procedure rooms, and recovery rooms. I’ve interacted with everyone from surgeons to nurses, CNAs, patient care techs, therapists of all kinds, pharmacists, and imaging technicians. I’ve been impacted both positively and negatively by all of them—no special credentials required.

I recall one early admission in the ICU. It was terrifying. They were listing me for my heart transplant while simultaneously trying to stabilize my erratic heartbeat. I was bewildered, scared, and miserable—and to top it off, my ICU room had no windows, no privacy, and no toilet. The cardiothoracic surgery team came to meet me. I don’t remember much from that meeting, but after everyone else left, one PA stayed behind. With tears in his eyes, he said, “What you’re going through is very scary. We’ll do everything we can to help.”

Another memory comes from a particularly rough pre-transplant clinic visit—perhaps when I was told my transplant listing would be paused while I underwent treatment for thyroid cancer. I broke down in tears. I’d been stoic until that moment, but everything spilled over. My fake eyelashes fell off. My nose ran. It was embarrassing. The doctor hugged me—a gesture unusual for physicians, at least in my experience. Then, that weekend, on her own time, she called to check in on me.

Even now, I sometimes dread my visits to the cardiac clinic. I occasionally leave feeling gaslit or hopeless. The clinic isn’t my favorite place. Yet, even there, I’ve noticed small acts that matter. A medical assistant compliments my outfits and tells me I look nice. That simple kindness motivates me to show up with a smile, to demonstrate that I am worth supporting.

I’ve had nurses hold my hand, patient care techs remember my name and greet me with a smile, echocardiogram techs treat me like a human being, and doctors treat me more like a friend than a body in a bed.

One of my favorite stories comes from a hospital stay while being treated for Lippy. I was trying to make the best of it, to find silver linings. There was a housekeeper who swept my floor almost every day. I could tell by the shine in his brown eyes beneath his mask that he was genuinely happy. Aaron, ever the conversation starter, asked where he was from. He paused, smiled, and shared his story.

He was a refugee from Eritrea in East Africa, who had spent 14 years in forced military service and 15 years in a refugee camp in Ethiopia before coming to America. He had lived in Seattle before settling in Salt Lake City. He had a wife and five beautiful children, proudly showing us photos. He bragged about his daughter, who had earned a scholarship to a local college.

Then, humbly and tenderly, he spoke of his son, whom he thanked God for before recounting how his son had become involved in a gang and tragically lost his life to senseless violence at a nearby trailhead. I remembered hearing about the incident in the news. My heart broke for him, this unassuming man.

“I do not judge,” he said. “I thank God; he was a gift.”

In that moment, this man—through his vulnerable authenticity—made me feel seen, valued, connected, and human again. And perhaps, in that connection, I found the medicine I truly needed to begin healing.

The lessons I take from these experiences are clear—and there are always lessons:

Never let adversity dim your light.
Never let your circumstances interfere with your ability to connect with another person or to act on what you feel called to do.
Life itself is the best course in kindness, the best training in compassion.
No credential is required to be a decent human.
And there is no gatekeeper to having a positive impact on someone’s life.

It’s not about titles or degrees. It’s about showing up, being present, and living with empathy. Any human can do that.

Deep in the Sweet Melancholy

In the movie Elizabethtown, the character Drew Baylor stands in his aunt’s kitchen with a group of new-to-him relatives following his father’s viewing. While visiting estranged family in Kentucky, Drew’s father had passed away from a heart attack and Drew was sent by his mother and sister from Oregon to take care of the funeral and bring his father’s remains home. Chaos ensues. In this particular scene, the night is warm, the light is low, they’re obviously tired both physically and emotionally, yet they’re smiling as they revel in a sweet melancholy that often follows traumatic life events.

I love this scene. It calls to mind a difficult-to-describe sentimentality that you have to experience to understand. It is this almost peaceful longing, a reverent recall of difficult times. As if the slow let down that happens following the adrenaline rush and fear, provides its own serotonin release, cementing a beautiful nostalgia all its own.

This is what my family experienced in the month following my heart transplant.

As you recall, my miracle phone call happened on December 14th 2023, with surgery taking place in the wee hours of the morning of December 15th–just in time for the holidays. I had a record recovery and left the hospital eight days after surgery—it would have been seven but I begged for one more day to learn how to manage my medications and get a hold on my blood sugars. Nevertheless, I was released from the hospital on December 23rd—just in time to celebrate Christmas with my family.

Coming home from the hospital felt a lot like bringing home a newborn infant. For me it meant a whole new way of life. While I had gone through a lot of training on medications and things to watch for, I felt unprepared and scared. My body did not feel like my own. I was weak and sore and dependent on everyone around me—something I wasn’t used to. Even showering was a new experience with procedures and regimens that needed following and for which I needed assistance. It was bewildering.

As I was so fresh from transplant, I basically had no immune system. My transplant team asked us to keep visitors to a minimum. We decided to basically act like it was the 2020 pandemic again and go on lockdown. Our married daughter came back home with her husband, our college-age sons moved back in (it was winter break anyway), and we hunkered down. Even though surgery had gone well and my recovery was, for all intents and purposes, on track, we were still taking things day by day.

We fell into a rhythm of sorts: wake up, take medicine, check all my vital signs, make our way to the family room, take medicine, eat cheese (seriously, we ate six pounds of cheese), take medicine, assemble legos, take medicine, share a meal, take medicine, make the strenuous journey up the stairs to my room and take all of my vitals again, take medicine, make our way to bed for a restless night of worry and night sweats (oh, the joyous transplant medication side effects).

There were the inevitable excursions out to the lab, the pharmacy, or to the hospital for right heart caths and biopsies. I hated those times. Those days were long for me. I could barely walk across a room, let alone last an entire day navigating the halls of the University of Utah hospital. I was expected to arrive, fasting, at the hospital usually before 7:45 a.m. for my then weekly biopsies to check the progress of my heart’s healing and monitor any signs of rejection, and we wouldn’t arrive back home before 5:00 p.m. Thankfully, neighbors and friends often provided dinner for our little tribe on those harrowing days.

For me, just the like the early weeks of motherhood, the days were simple but hard.

The holidays came and went and we existed in our own little bubble.

No Christmas Eve parties. No family Christmas dinners. No Sunday services. No New Year’s Eve party. Just the seven of us gathered around the six-pound block of Muenster and the Titanic lego set.

The thing is, however, when we each think back on that Christmas and holiday season we each remember it with this deep, sweet nostalgia for the melancholy of that time. And though this is just my retelling of that season, we talk about it in a similar way. While we’re all grateful to have moved on and healed from that winter of 2023-24 we all express a longing, if you will, for those simple-but-hard days.

There can be a pulling together, a unifying in times like these. Where difficult events often force change—change in our lives and changes in ourselves—nostalgia pulls us back together. Whether it arises through grief brought on by loss or through the emotional release that takes place following periods of great stress, this sense of exhausted tranquility helps us process intense feelings into something–well, transcendent.

Call it a coping mechanism, call it delusion—call it what you will—but I call this experience a blessing for enduring well the hardships life throws our way.

I can recall one other time when I felt deep in this sweet melancholy before. It was after the passing of my brother. At the end of a long, emotional day of funeral planning we had gathered in the office of his home to go through some papers and photos. It was a warm summer night, not unlike that scene from Elizabethtown. We ended up crying and laughing, laughing and crying into the night, remembering better, easier, more innocent times. Recalling times when laughter came without tears, when memories were either good or bad, when we were uninformed on the nuances and complexities of adult relationships, and we simply would not have been able to fathom a world where joy and sorrow could exist side by side, and the understanding that we are all better for it.

A world before we knew the longing for simple-but-hard times—and the joy of a six-pound block of cheese.

But I Didn’t Like My Face

I’m no Pollyanna, but I wouldn’t consider myself a pessimist either. In any situation, given time to think, I feel I have the ability to see both the good and the bad. When I was listed for transplant, Aaron gave me this cute little trinket—a cloud-shaped tchotchke engraved with the words Always find the silver lining. And that has become a mantra of sorts.

I decided early on that I was going to use the opportunity of receiving a heart transplant as a chance to improve myself—to truly have a change of heart. I often fantasized about waking up from surgery, or at least coming through recovery, with this grand new perspective that granted me wisdom, patience, kindness, and the ability to find a well of joy in life that was so often more difficult to find before. Receiving this second chance at life, this priceless gift, would make me a better person. And I tried—I really tried.

But it’s an uphill battle.

I had been warned about the nasty-but-necessary steroid prednisone. The one that makes you angry, tearful, sleepless, hungry, jittery, giggly, ravenous, and basically causes you to climb the walls. And for me, it did all of those things. I hallucinated (ask my family about the jelly-headed aliens and the Christmas light parade); I stayed up all night writing and rehearsing my TED Talks—plural; I broke down in tears in front of the poor cafeteria worker when I was reminded the quesadilla didn’t work with my dietary restrictions, just to name a few of my adventures on prednisone.

And then, one month post-transplant, I had my first rejection episode—a condition where the immune system attacks the transplanted organ. I was called back to the hospital for an extra blast of IV Solu-Medrol, an intense steroid. After a three-day stay, I left the hospital and waited for the inevitable… moon face.

I would place a picture here, but I don’t want to. Just Google an image of Alec Baldwin.

I tried everything to take the swelling down: gua sha, red-light therapy, lymphatic drainage, depuffing masks—you name it, I’ve dropped dimes on it. To no avail.

I was so sad at what my life looked like, I cried, “I am a monster!” Aaron hugged me and assured me, just like everyone else had, that it would go away soon.

It took about a year for the swelling in my face to go down—at least in my opinion. It took just long enough for me to have a recurrence of thyroid cancer that required surgery, which threw me back into rejection—again. Another blast of steroids, this time outpatient, led to another, albeit slighter, moon-face period.

You don’t even have to wonder—I’ll save you the energy and volunteer that I am, indeed, vain. I’ll admit it. I like to look nice. The first thing I do in the morning is put on makeup. Well, actually, I brush my teeth first, but makeup comes before I leave my room. Even so, I tried finding the silver lining: “Look how the prednisone puffiness has almost erased my fine lines and wrinkles. Maybe I’ve found the fountain of youth!”

Aaron would say, “You’re still beautiful to me, and you don’t look anything like Alec Baldwin.”

Friends kindly told me they didn’t even see a difference. Yeah, right.

And, of course, I heard the inevitable: “It could always be worse.”

Never—I repeat, NEVER—say these words to anyone, especially a transplant patient.

It got worse.

In June, I bit my lip. Who hasn’t? It seemed innocuous at first. But over the passing days, that bite turned into a canker. I’m no stranger to cankers—especially since transplant and being put on the immunosuppressant sirolimus. I didn’t think much of it and just steered clear of the right side of my mouth while eating for a while. But things got worse—in a big way.

Two weeks later, we flew to Ohio to help our daughter move from Cleveland back home to Utah. She met us at a hotel with her car loaded with boxes, and we began driving across the country. My canker hurt, and I was mainly eating soft foods and shakes to avoid injuring it more. Nevertheless, while stopped for the night in Nebraska, I woke up in excruciating pain. I went into the bathroom of our hotel room to inspect my lip. It was so swollen I thought the skin might actually split. The canker itself was about the size of a corn kernel, but the lip was hugely swollen, and I began to worry.

Here I was, literally in the middle of nowhere Nebraska, far from a hospital, a full day’s travel from my transplant team, and I didn’t know if I had some kind of rare, raging infection or what. I kept ice on it the next day as we made our way home, where I got myself to Urgent Care as quickly as I could.

Over the next few days, I went back and forth to Urgent Care and back and forth on the phone with my transplant team, trying to figure out what was going on with this mouth ulcer—until I found myself in the hospital with the world’s worst canker sore, which I had begun calling Lippy. It was so big it deserved a name.

Again, I would place a picture here, but I don’t want to. It makes me sad. But you can find it on my Instagram. Just imagine a gnarly mouth sore about the size of a large gumball, with swelling into the cheek.

I was in and out of the hospital over the course of two weeks as Lippy got worse and worse. I couldn’t eat due to the intense pain it caused—anything I consumed had to go through a straw. I couldn’t talk, and I frequently drooled. At the same time, I was struggling with terrible migraines. And every professional and specialist at the University of Utah looked at me with pity and said, “I have no idea what this is, but it sure looks bad.”

These are words nobody should ever hear.

I was tested for a myriad of infectious diseases, parasites, amoebas, autoimmune diseases, even multiple forms of cancer. I gave blood samples, stool samples, tissue samples and biopsies, and had a CT scan. But in the end, the doctors were split: it was either a bad reaction to sirolimus or a reactivation of Epstein-Barr virus. Either way, the treatment was time to heal and—yes, you guessed it—more steroids.

I was struggling.

My heart transplant had been nothing short of a miracle—I was truly grateful. And in the grand scheme of things, I’d been blessed with a fairly easy time and few setbacks with regard to transplant. Others really did have it worse. I knew this to be true.

But I didn’t like my face.

And I hated myself for it. I wanted to like myself, inside and out. I wanted to be 100 percent happy and grateful all the time post-transplant. But here I was, regretting everything. If life post-transplant meant constantly worrying about cancer, infections, rejection, and hating what I looked like, maybe I’d made the wrong choice when I accepted this heart. Ouch—that hurts to admit.

At the end of the day, the only choice I had was to sit it out and wait. Wait for Lippy to heal and for, eventually—hopefully—the swelling in my face to go away. And after two months, Lippy did pretty much go away, except for the scar tissue left behind. The puffy face, well, that may just be my new normal, at least in part.

I think it’s fair to say that two contrasting things can be true at the same time. I am finding that I can be grateful for my transplant and also be upset about some of the hardships it brings to my life. I can find joy in celebrating life’s milestones I get to witness—like my son’s wedding and the birth of my first grandchild—and still bemoan the chronic condition I now live with. I can be grateful for life and still not love my puffy face.

What I’m learning is that change is a choice that comes only by consistently showing up with gratitude. That new perspective and change of heart I hoped for with my transplant is up to me—and that it’s also perfectly acceptable to see the clouds along with the silver lining.